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Google Encourages Girls to get into Coding

Lisa Skrezec News Leave a Comment

Last week I came across a great article in regards to Google trying to get more younger girls involved in coding. Having worked in the technology industry for several years now, I can personally attest that women are few and far between. In the past, when hiring new network engineers, we would cross our fingers and HOPE to get at …

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Dine and Donate!

Lisa Skrezec Events, Charity Leave a Comment

Mark your calendars & bring your appetite — on Wednesday, August 20th, we’ll be hosting a charity dinner at Buffalo Wild Wings in Riverhead, NY! If you bring one of the flyers for our event, 15% of your bill will go to NORD (National Organization for Rare Disorders). Here at Orphan Drug Solutions, we’re all about being healthy and staying active, but on …

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New Boston Research Center Aims to Identify Rare Diseases

Lisa Skrezec News Leave a Comment

During my morning reading I came across a great article in The Boston Globe, about the opening of an undiagnosed-diseases center in Boston. We have all heard countless stories of people going months, sometimes even years, waiting to hear from their doctor as to the reasoning behind their symptoms. To think some don’t ever get the satisfaction of knowing exactly what …

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21st Century Cures Initiative

Lisa Skrezec News Leave a Comment

NORD’s Director of the Scientific Advisory Committee, Dr. Marshall Summar, presented nine recommendations to the Energy & Commerce Committee at their hearing on the 21st Century Cures: Incorporating the Patients’ Perspective to accelerate the pace of medical breakthroughs and cures in the United States, and to speed up the process to get safe and effective drugs approved:  Establish a Commission and National Plan to Determine …

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NORD

Lisa Skrezec Charity Leave a Comment

Throughout our extensive research, we came across NORD’s (the National Organization for Rare Disorders) website countless time. They are not only a non-profit organization, but a provider of various information pertaining to the rare disease community. While their website may be overwhelming at first, it is filled with helpful information for all, whether you’re a patient, advocate, or medical professional. They …

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This Is Sparta!

Lisa Skrezec Charity Leave a Comment

As a previous Spartan Racer myself, we’re proud to say that we’re participating in the “CHARITY CHALLENGE” Spartan Sprint located in Killington, Vermont on September 21st 2014! With mental and physical challenges like no other, we’ll be running up mountainous hills for 4.5 miles that are over 3x the size of the Empire State Building, climbing our way over 10 …

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Making a Difference, One Step At a Time

Lisa Skrezec Charity

What’s better than participating in charity events for the rare disease community and keeping our team healthy? Not much — which is why we have 5ks, walks, and other runs lined up this summer/fall! While the majority of the action in the rare disease community is either on the west coast in California or up north in Massachusetts, we were able to search far …

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World Orphan Drug Congress USA

Lisa Skrezec Events

As a relatively new start up (with many years of custom software experience) we dedicated countless hours of research to anything and everything pertaining to orphan drugs. We found the orphan drug and rare disease community extends worldwide and hosts various events and conferences. The World Orphan Drug Congress is one of the biggest events, and one in which we …