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At first glance, a SAAS model may appear to be a solid option to streamline your workflow. But, you need to be sure you’re comparing apples to apples when it comes to the SAAS guys and us– does the SAAS model have all the features that the software solutions has and if not, are the missing features important to you? …
Last week I came across a great article in regards to Google trying to get more younger girls involved in coding. Having worked in the technology industry for several years now, I can personally attest that women are few and far between. In the past, when hiring new network engineers, we would cross our fingers and HOPE to get at …
Mark your calendars & bring your appetite — on Wednesday, August 20th, we’ll be hosting a charity dinner at Buffalo Wild Wings in Riverhead, NY! If you bring one of the flyers for our event, 15% of your bill will go to NORD (National Organization for Rare Disorders). Here at Orphan Drug Solutions, we’re all about being healthy and staying active, but on …
On Tuesday July 22nd we will be hosting a bake sale at ExecuTrain of Long Island. 100% of the proceeds from our sale will be donated to NORD (National Organization for Rare Diseases). Suggested donation of $1 per cookie. If you cannot attend our bake sale, and would still like to contribute to NORD, please feel free to make a donation …
During my morning reading I came across a great article in The Boston Globe, about the opening of an undiagnosed-diseases center in Boston. We have all heard countless stories of people going months, sometimes even years, waiting to hear from their doctor as to the reasoning behind their symptoms. To think some don’t ever get the satisfaction of knowing exactly what …
NORD’s Director of the Scientific Advisory Committee, Dr. Marshall Summar, presented nine recommendations to the Energy & Commerce Committee at their hearing on the 21st Century Cures: Incorporating the Patients’ Perspective to accelerate the pace of medical breakthroughs and cures in the United States, and to speed up the process to get safe and effective drugs approved: Establish a Commission and National Plan to Determine …
Throughout our extensive research, we came across NORD’s (the National Organization for Rare Disorders) website countless time. They are not only a non-profit organization, but a provider of various information pertaining to the rare disease community. While their website may be overwhelming at first, it is filled with helpful information for all, whether you’re a patient, advocate, or medical professional. They …
As a previous Spartan Racer myself, we’re proud to say that we’re participating in the “CHARITY CHALLENGE” Spartan Sprint located in Killington, Vermont on September 21st 2014! With mental and physical challenges like no other, we’ll be running up mountainous hills for 4.5 miles that are over 3x the size of the Empire State Building, climbing our way over 10 …
What’s better than participating in charity events for the rare disease community and keeping our team healthy? Not much — which is why we have 5ks, walks, and other runs lined up this summer/fall! While the majority of the action in the rare disease community is either on the west coast in California or up north in Massachusetts, we were able to search far …
As a relatively new start up (with many years of custom software experience) we dedicated countless hours of research to anything and everything pertaining to orphan drugs. We found the orphan drug and rare disease community extends worldwide and hosts various events and conferences. The World Orphan Drug Congress is one of the biggest events, and one in which we …
