Looking back on 2014, we can honestly say we’ve had an amazing first year! Prior to this year, ODS was just a concept we wanted to eventually pursue in the future — but we rolled up our sleeves and got it done! Our product, that has been a success in the past, is now completely revamped and better than ever. …
How ODS Improved Viropharma’s Patient Care
In 2006 when Orphan Drug Solutions first went to Viropharma’s offices (prior to them being acquired by Shire), they had 80 employees dedicated to the advancement of their primary drug, Cinryze. Cinryze was and is the only FDA-approved C1 esterase inhibitor therapy used to treat HAE (Hereditary Angioedema), so its success was not just important for them as a company, …
Google Announces New Project That Could Detect Cancer
Googled unveiled an interesting futuristic project at the WSJD Live conference that could someday embed nanoparticles in your bloodstream to detect diseases like cancer. The goal behind the GoogleX lab project is to develop a system that doctors can rely on for all of our tests. You would swallow a pill with nanoparticles, which would then bind themselves to cells …
Three Siblings Battling Rare Disease
I recently came across this article while browsing the news, it talks about three siblings (Jaxen, Tieler and Boston) that are all battling a rare white blood cell disease that makes food deadly. Each is allergic to pets, pollens and multiple foods, and has spent weeks at a time in the hospital — and they know they’ll be back sooner …
ALS Ice Bucket Challenge Is Winning
Social media has made some pretty ridiculous trends popular over the last few years, but let’s face it — we all love ridiculous. Our culture thrives on shock value and we all love sharing it with our friends online. But, social media has brought us a new trend that actually made a difference. It’s addicting, it’s viral, it’s unavoidable — the …
Why SAAS Models Are Not Our Future
At first glance, a SAAS model may appear to be a solid option to streamline your workflow. But, you need to be sure you’re comparing apples to apples when it comes to the SAAS guys and us– does the SAAS model have all the features that the software solutions has and if not, are the missing features important to you? …
Google Encourages Girls to get into Coding
Last week I came across a great article in regards to Google trying to get more younger girls involved in coding. Having worked in the technology industry for several years now, I can personally attest that women are few and far between. In the past, when hiring new network engineers, we would cross our fingers and HOPE to get at …
New Boston Research Center Aims to Identify Rare Diseases
During my morning reading I came across a great article in The Boston Globe, about the opening of an undiagnosed-diseases center in Boston. We have all heard countless stories of people going months, sometimes even years, waiting to hear from their doctor as to the reasoning behind their symptoms. To think some don’t ever get the satisfaction of knowing exactly what …
21st Century Cures Initiative
NORD’s Director of the Scientific Advisory Committee, Dr. Marshall Summar, presented nine recommendations to the Energy & Commerce Committee at their hearing on the 21st Century Cures: Incorporating the Patients’ Perspective to accelerate the pace of medical breakthroughs and cures in the United States, and to speed up the process to get safe and effective drugs approved: Establish a Commission and National Plan to Determine …