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How ODS Improved Viropharma’s Patient Care

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In 2006 when Orphan Drug Solutions first went to Viropharma’s offices (prior to them being acquired by Shire), they had 80 employees dedicated to the advancement of their primary drug, Cinryze. Cinryze was and is the only FDA-approved C1 esterase inhibitor therapy used to treat HAE (Hereditary Angioedema), so its success was not just important for them as a company, …

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Google Announces New Project That Could Detect Cancer

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Googled unveiled an interesting futuristic project at the WSJD Live conference that could someday embed nanoparticles in your bloodstream to detect diseases like cancer. The goal behind the GoogleX lab project is to develop a system that doctors can rely on for all of our tests. You would swallow a pill with nanoparticles, which would then bind themselves to cells …

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ALS Ice Bucket Challenge Is Winning

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Social media has made some pretty ridiculous trends popular over the last few years, but let’s face it — we all love ridiculous. Our culture thrives on shock value and we all love sharing it with our friends online. But, social media has brought us a new trend that actually made a difference. It’s addicting, it’s viral, it’s unavoidable — the …

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Google Encourages Girls to get into Coding

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Last week I came across a great article in regards to Google trying to get more younger girls involved in coding. Having worked in the technology industry for several years now, I can personally attest that women are few and far between. In the past, when hiring new network engineers, we would cross our fingers and HOPE to get at …

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New Boston Research Center Aims to Identify Rare Diseases

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During my morning reading I came across a great article in The Boston Globe, about the opening of an undiagnosed-diseases center in Boston. We have all heard countless stories of people going months, sometimes even years, waiting to hear from their doctor as to the reasoning behind their symptoms. To think some don’t ever get the satisfaction of knowing exactly what …

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21st Century Cures Initiative

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NORD’s Director of the Scientific Advisory Committee, Dr. Marshall Summar, presented nine recommendations to the Energy & Commerce Committee at their hearing on the 21st Century Cures: Incorporating the Patients’ Perspective to accelerate the pace of medical breakthroughs and cures in the United States, and to speed up the process to get safe and effective drugs approved:  Establish a Commission and National Plan to Determine …