We are super excited for our friends at Global Genes as they launch RARE Daily! Global Genes’ RARE Blog has been re-imagined to bring more opportunities for rare disease patients to learn and stay informed on important issues with a team or new contributors and subject-matter experts within the rare disease community.
“The new format of the RARE Daily provides access to news about rare disease that affects our community directly, in a more concise way.” said Managing Editor, Ilana Jacqueline. “Readers will now be able to find exactly what they’re looking for with easier navigation and search functionality.”
The RARE Daily will be the one-stop-shop for all up-to-the-minute rare disease news. Readers can also look forward to interviews with industry professionals and subject-matter experts, recaps on big events like World Orphan Drug Congress, the BIO International Convention, various NIH/FDA events, among many others. The RARE Daily also opens doors to new contributors to share expertise and educate advocates on a variety of topics that will help foster activism for rare disease.
The RARE Daily will also be home to a weekly podcast series hosted by Daniel Levine–science journalist.. Listeners can expect engaging dialogue with biotech and pharmaceutical leaders, legislators, science and technology innovators and healthcare experts.
A hand-picked group of experts will be joining the blogging team to share their expertise in advice columns, how-to articles, and stories of their own personal struggles coping with complicated health issues.
“The Global Genes RARE Blog was originally intended to be community resource providing a platform for rare disease patients to voice their stories. Now based on our experience working with patients and advocates we realized that this community needs greater access to information, news, and insights,” said Nicole Boice, Founder & CEO at Global Genes. “With the re-launch of our blog as the RARE Daily, we’re bringing even more value to this community with the addition of these new expert columnists and hard-hitting content from the rare disease world.”
We cannot wait to see what they have in store!