This year, we were super excited to participate in and raise awareness for Rare Disease Day! Being this is our first year, we wanted to do something extra special and fun to bring the community together for a good cause. In conjunction with Cullen’s Crusaders and the Crazy Crepe Cafe, we help our ‘Painting For A Cause’ event! On February 28th …
8 Year Old Boy Raises $800K For Rare Disease
While there are many negative stories floating around about the youth of our country, it is always exciting to come across a story that literally puts a smile on your face. An 8-year-old boy has raised over $800,000 for his friend who suffers from a rare disease. That headline alone made my jaw drop. Lora Purtnazarian and her husband Rabin …
Dine and Donate!
Mark your calendars & bring your appetite — on Wednesday, August 20th, we’ll be hosting a charity dinner at Buffalo Wild Wings in Riverhead, NY! If you bring one of the flyers for our event, 15% of your bill will go to NORD (National Organization for Rare Disorders). Here at Orphan Drug Solutions, we’re all about being healthy and staying active, but on …
Cookies for a Cause
On Tuesday July 22nd we will be hosting a bake sale at ExecuTrain of Long Island. 100% of the proceeds from our sale will be donated to NORD (National Organization for Rare Diseases). Suggested donation of $1 per cookie. If you cannot attend our bake sale, and would still like to contribute to NORD, please feel free to make a donation …
This Is Sparta!
As a previous Spartan Racer myself, we’re proud to say that we’re participating in the “CHARITY CHALLENGE” Spartan Sprint located in Killington, Vermont on September 21st 2014! With mental and physical challenges like no other, we’ll be running up mountainous hills for 4.5 miles that are over 3x the size of the Empire State Building, climbing our way over 10 …
Making a Difference, One Step At a Time
What’s better than participating in charity events for the rare disease community and keeping our team healthy? Not much — which is why we have 5ks, walks, and other runs lined up this summer/fall! While the majority of the action in the rare disease community is either on the west coast in California or up north in Massachusetts, we were able to search far …