As a relatively new start up (with many years of custom software experience) we dedicated countless hours of research to anything and everything pertaining to orphan drugs. We found the orphan drug and rare disease community extends worldwide and hosts various events and conferences. The World Orphan Drug Congress is one of the biggest events, and one in which we cannot wait to attend in April 2015.
In the meantime, Lifetime is airing a special this Friday July 11th at 7am EST on The Balancing Act. They were at this past years congress and filmed the whole thing! Make sure to set your DVRs this Friday morning to see what happens behind-the-scenes at this nationally recognized event. They also are going to give us some insight as to what we can expect at next years World Orphan Drug Congress!